Next week, I am eagerly anticipating my virtual attendance at the 65th American Society of Hematology (ASH) Annual Meeting as a member of the International Myeloma Foundation’s “Myeloma Voices” team. ASH is where the latest advancements in multiple myeloma research will be unveiled. As a passionate patient advocate, I am particularly excited about the sessions that delve into the realm of smoldering multiple myeloma (SMM) — an intermediate asymptomatic stage of multiple myeloma. My focus at this year’s ASH will be on the updates and breakthroughs relative to SMM and on the psychological aspects of being a patient.

Unveiling the Mysteries of Smoldering Myeloma: A Beacon of Hope

For those unfamiliar, SMM is a condition where abnormal plasma cells are present in the bone marrow but haven’t yet reached the threshold for an active multiple myeloma diagnosis. The prospect of gaining deeper insights into this stage of the disease is incredibly exciting. Researchers and clinicians are working hard to uncover potential biomarkers, predictive tools, and therapeutic interventions that may alter the trajectory of smoldering myeloma and, in some cases, prevent its progression to full-blown multiple myeloma.

What’s on My Radar?

The sessions I’m looking forward to include the updates on clinical trials that are exploring treatments for smoldering myeloma. Potential breakthroughs could significantly impact the quality of life for individuals living with this condition. Equally important are sessions that explore the psychological impact of a smoldering myeloma diagnosis.

Addressing the Psyche: A Holistic Approach to Patient Well-being

While medical advancements are crucial, it’s equally essential to recognize the psychological toll that a cancer diagnosis, even in its precursor stage, can take on individuals. The iStopMM project will be reporting on the psychological data it has collected. I’ll also be looking for sessions that explore the emotional and mental well-being of patients. As a patient advocate, I believe in a holistic approach that encompasses not only the physical aspects of the disease but also the emotional and psychological dimensions.

How This Information Can Benefit Others

The knowledge gained from ASH sessions will undoubtedly shape the future of SMM treatment and patient care. When patients are equipped with the latest information, they can make more informed decisions about their healthcare. Similarly, healthcare providers can tailor their approaches to better meet the unique needs of individuals in the SMM stage. Additionally, insights into the psychological aspects of being a patient will hopefully foster a compassionate and empathetic healthcare environment, leading to improved resilience and mental well-being.

In conclusion, I’m excited to be a part of the International Myeloma Foundation’s ASH Myeloma Voices team and I’m preparing to immerse myself in the upcoming meeting. The potential breakthroughs in SMM research and the emphasis on addressing the psychological aspects of being a patient represent significant strides towards a more comprehensive and patient-centric approach to healthcare. I look forward to sharing these insights and championing a future where hope and knowledge go hand in hand on the journey of living with and possibly conquering SMM.

— Jessie Daw
@Daw6Jessie