Honored and Terrified

Honored and Terrified

I’m a newcomer to the American Society of Hematology (ASH) Meeting an Exposition as a patient representative, and I’m honored and terrified! I’m a 16-year survivor of myeloma, and my first transplant was exactly 16 years ago. At that time, in 2007, the standard of...
ASH 2023: Bringing It into Focus

ASH 2023: Bringing It into Focus

For the past few years, I’ve been blessed to attend ASH virtually as a Support Group Leader with the International Myeloma Foundation. My experience, since 2006, is in oncology nursing; I have led the virtual Mid-Atlantic Myeloma Information & Support Group, based...
Just Getting Started

Just Getting Started

What a journey the last 3 years have been. To sum it up, amid COVID, I was diagnosed with a fractured thoracic 5 vertebra and multiple myeloma in October 2020, at the age of 42. Not knowing anyone my age with multiple myeloma, I started looking for support groups in...
You Can Leave Your Hat On

You Can Leave Your Hat On

The 65th American Society of Hematology Annual Meeting and Exposition, a.k.a. #ASH23 returns to San Diego, California, December 9-12, 2023. Truly my favorite location for this meeting. If you are new to The Patient Voices@ASH program developed by the International...
ASH 2023: Live and In Person — Take 2

ASH 2023: Live and In Person — Take 2

Last year I was supposed to attend the American Society of Hematology’s (ASH) annual meeting in New Orleans in person. After 2 years of attending virtually, I was really looking forward to seeing my fellow advocates from the International Myeloma Foundation (IMF) and...